Dyslexia in Oklahoma Survey Summary
For one week we asked parents and guardians of students with dyslexia to respond to our Dyslexia in Oklahoma Survey. The responses were gathered to gain a clearer picture of the cost and struggles of families in Oklahoma.
Dyslexia can be found in a single child or in many siblings with in a family. One family shared their struggle of getting help for their twins in the public school who are now in private school setting.
Retention is hard for the entire family. Retention should be carefully considered. If retention is decided as the best option for the child the a plan needs to be put into place that would allow the child multisensory structured reading instruction the next year that would meet the needs of a student with dyslexia.
Families in all income levels are affected by dyslexia. The ability to afford outside intervention for their children can be a strain. Some families rely on extended family members for assistance while other will spend funds that would be set aside for college savings.
Over 50% of the families have spent between $500 to $10,000 dollars to support their students. These cost include paying for evaluations when parents suspect dyslexia. Most insurance will not pay for evaluation stating it is an educational issue.
If parents in rural areas are able to find outside intervention services to meet their dyslexic child's needs, they are having to driving long distance to do so. Spending large amounts of time and gas to get their child the support they need.
There are many student being serviced on an IEP but many of these students are not receiving intervention during the school day. Many will attend tutoring in addition to homework in the evenings.
Many Families are paying for tutoring or private school. Other families have made the decision to home school.
In the many personal stories that were share as part of the survey many common threads came to the surface:
- Many parents are still being told by schools that dyslexia is not recognized or considered as possible qualifying disability in Oklahoma
- Administration, General Education, Special Education, and Reading Specialist need more training so they can better support students with dyslexia.
- As students get older they have fewer opportunities for specialized reading instruction.
- The financial strain on families to provide private tutoring leaves many families grateful they have the means while having sorrow for the families who are not in the position to help their children.
The stories from families reminds us that these students and their families are in need of help and support.
"I am so glad she was diagnosed and started services in Texas. If I could, I would move back to Texas just to receive services for my child."
"I have asked every teacher since kindergarten if she could be dyslexic only to have my concerns dismissed. I trusted the professionals and ignored my gut feeling"
"Luckily, he is a Junior and we only have to fight another 2 more years. We're beyond exhausted!"
"I only wish that my hard working, sweet and determined dyslexic daughter had the opportunity to get a great education in our community in our school district."
"I laid awake at night worried my son was becoming a statistic for school drop out and even prison. Now he dreams of going to medical school to become a surgeon."